by Benjamin Allen
The death of Benjamin’s wife and two children through an HIV infection became the watershed experience that reshaped his life. Lydia was infected in 1982 at the birth of their first son, Matt. Three months after Bryan’s birth in 1985, the family discovered Lydia and the children’s HIV+ status. Bryan was 8 months old when he died in 1986, Lydia died in 1992 at the age of 38, and Matt was 13 when he died in 1995.
I wanted to go the distance. At the beginning, it was quite clear what that meant. When he died, distance became different, less clear, a nebulous path of a tenuous life.
Almost three years passed from Lydia’s passing to Matt’s. Bryan died four years before Lydia. From the moment we found out that they were going to die in that thirteen-year span, I wanted to go the distance.
I wanted to walk as closely to each one as I could before death parted us. I wanted to hold all of them with all of me. I wanted to emotional lean into every moment and not turn away. I wanted to place my hand on the flame and not run from the pain. I wanted to be there. Wherever they went I wanted to be there.
Matt and I were very close from the beginning to the end. When the pain of my love reached apex after apex and I wanted to run, I leaned in even further. I needed to go the distance because I knew the distance grows more distant. Read more